Parents want to take Charlie Gard home to die

Bill Rogers
July 26, 2017

Not for the first time the parents through their solicitors raised the prospect of criminal proceedings against the hospital and its staff.

At the hearing on Monday, Yates and Gard said muscle atrophy suffered by Charlie in recent months meant the proposed nucleoside bypass therapy no longer offered him the prospect of a meaningful life.

"The care plan must be safe, it must spare Charlie all pain and it must protect his dignity".

Grant Armstrong says it is "worthy of a Greek tragedy" that Charlie's parents must withdraw their appeal, just as they were about to present new evidence to a court.

It's poppycock, of course, and not just because the reports have shown that the baby has been receiving professional, compassionate care and that the hospital's case for taking him off life support has been a merciful one - they are anxious he's in a lot of pain and know that he is not going to get better.

She said the hospital had searched "the length and breadth of the country" for an intensive care specialist willing to oversee the care at home, but in vain. There are 51 different specialties at the hospital, which treat some of the UK's sickest children.

Victoria Butler-Cole, representing Charlie's legal guardian, said the family's chosen experts can not provide continuing ventilation outside the intensive care setting.

"It must be provided in a specialist setting by specialists".

The parents of Charlie Gard, the terminally ill British baby whose plight has garnered global headlines, said Tuesday they want to take their son home to die.

"It is in Charlie's best interests, and everybody's, that the risk of a precipitate, distressing or disordered death is removed so that he may be assured of a peaceful and dignified passing".

"The last 11 almost 12 months have been the best, the worst and ultimately life changing months of our lives but Charlie is Charlie and we wouldn't change him for the world".

PRO-LIFE COLLEGE STUDENT? LifeNews is looking for interns interested in writing, social media, or video creation. A hospice plan brings with it considerations of time, since hospices in the United Kingdom lack the resources and trained staff to provide invasive ventilation for more than a period of hours and because they are not licensed or insured to deliver intensive care.

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Doctors at Great Ormond Street said the therapy would not help.

The parents will be holding discussions with hospital authorities on how their son should be allowed to die. But after several weeks, the European court sided with the British court system.

"Emotions are as high in this case as they could be in any", said the presiding judge, Nicholas Francis.

"This case is now about time", Armstrong continued. "Due to delay, that window of opportunity has been lost".

"Charlie has waited patiently for treatment". He and a group of doctors examined Charlie last week and gave their expert opinions to the judge.

After a protracted legal battle, the Gards eventually relented when the window for the treatment had passed.

But Yates was back at the London High Court on Tuesday, this time for a hearing on practical arrangements for the end of Charlie's life.

"Why did we try to help Charlie?" "I know that here with us this would not have happened". Connie and Chris underscored that they "should have been trusted as parents". She said it has been "absolute living hell" to wait and wonder when the hospital might end his life support. "Our son is an absolute warrior and we could not be prouder of him and we will miss him terribly", Chris said.

8 June: Charlie's parents lose fight in the Supreme Court.

US -based anti-abortion activists flew to London to support Charlie's parents, and the case became a flashpoint for opposing views on health care funding, medical intervention, the role of the state and the rights of the child.

"Charlie's situation is very reminiscent of my family's battle to save my sister, Terri".

Other reports by TheSundaySentinel

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